Going for a MEG in a couple of weeks. {MAGNETOENCEPHALOGRAPHY}
http://www.epilepsy.com/epilepsy/meg_intro
It’s basically a bigger, better brain scan combined with EEG. Then they also do another MRI to compare. He’ll also have ultrasounds of his heart and major organs. The doctor wants to rule out Tuberous Sclerosis. But, it’s also used to map his brain and check if surgery would be an option.
Apparently there are only about 15 of these machines in the country, and people travel long distances to get one. I hope this testing finally gives us some good results. I don’t know how much more bad news I can take.
Our Journey with Infantile Spasms 