I talked to the neurologist on Monday. Well, I technically talked to her nurse and her assistant. But, we adjusted his night-time dosage of Sabril to 10 ml.
Yesterday he had a really good day. Hardly any seizures! Plus, I started to see more activity on his right side which had definitely started lacking. (If you remember, before all this started, he was favoring his right side, and then over time, was hardly using that side. He had even started slumping to the right in his high chair, as if he didn’t have the strength to hold up that side. It made sense, since the focal activity is in his left brain. But, yesterday, all the sudden he started using the right side again. It’s not like he automatically has all his motion back, but it was a definite improvement! He even had a {very brief} smile for his dad.
Today was good too, but not quite as good as yesterday. He was still using his right side. But, he did have a few more seizures, although they were still just the quick ones.
I hope we continue to see improvements! We’ll see what the EEG says when we do all the testing next week.
Our Journey with Infantile Spasms 