We went to our appointment with the neurologist today. But, it didn’t go as planned.
I brought up some of my questions about Infantile Spasms, how his seizures have changed, the video I had as evidence, and the fact that he isn’t responding to any of 3 medications. She explained that the EEG doesn’t show the hypsarrhythmia, and that we just don’t have the right dose of the right medication yet. She was nice, but at the same time, dismissive of me. I get it. I mean, she’s a neurologist, and I’m just the mom. But, you know what? She is *just* a neurologist. I AM THE MOM.
Something isn’t right. I wish she would listen.
Our Journey with Infantile Spasms 