Sometimes I forget just how this IS journey with my son has affected my daughter, who is now 11. But recently she wrote this article , and of course, it made me cry. She has been such a tough little nut on this journey, and although I wish I could have protected her from all of it, that just wasn’t possible.
When my brother first started having seizures, I was 7, almost 8. My mom saw something and we did not do anything the first time because we did not know what it was. The second time became more serious. I was playing with my friend, my mom hopped in a car and drove away. I had no idea what was going on.
I kept asking what happened. Truthfully I was so worried. He was my only sibling and I did not want anything to happen to him.
Our Journey with Infantile Spasms 