We just met with Zane’s neurologist for a more in-depth conversation about weaning him off his last med, Topamax. On this day before Thanksgiving, I’m thankful we went. She was much more definitive about explaining that the side effects of the medication may be doing more harm than good, with respect to his development. So, we are now going to be progressing with the wean.
I’m still insanely nervous and will be looking into some new purchases that help detect seizures or at least a better monitor/camera for his room. But, I do feel better about it after our meeting.
It’s going to be a scary and exhausting few weeks till he’s weaned, and for months afterward, when the likelihood of seizures coming back is highest. So please keep Zane in your thoughts and prayers!