Another milestone today: blowing bubbles

I tried to shorten it, but it doesn’t seem to be working.  Just watch the first 20-30 seconds and you’ll get the point.  😉


Concerned… but…

If you remember, there were a few days that Z was previously inconsolable on ACTH.  But, then, it was as if the medicine miraculously did what it needed to do, and then he was fine again. He started smiling, interacting, gaining milestones.  It was amazing.

Then comes yesterday, the day I had been dreading: the wean.  Z only went down 10 units on his meds, so I was nervous but at the same time, not really expecting anything to happen at this point.  But last night he was up a lot, inconsolable at times.  I couldn’t help but worry that somehow whatever had been done at the high dose was coming undone. No one seems to really understand how or why the medicine works, so I don’t know if that could even happen like that.  But it’s where your mind goes when you’re deliriously tired and afraid.

But then we both finally got a little sleep and are both feeling better.  And then…
Z rolled over from back to front for the first time ever.  And then… he did it a second time.  Yay!!!!!!!!!! Go baby Z!  It seems like such a small thing to most.  But, to me, it’s huge.  HUGE.  It brings tears to my eyes.  (Well, to be honest, it brings tears streaming down my face.) I so totally needed to see that this morning! 😉

Baby Z is an AMAZING boy!  I love that little guy!